Yesterday I left my wheelchair in the car – on purpose.

Denise ElysaAbout Denise Elysa, Lived Experience, Mind-body healing, POTS Leave a Comment

Yesterday we took our youngest to the Aquarium…and I left my wheelchair in the car. Most of healing does not happen overnight, nor in big, sudden, social-media worthy shifts. Have I experienced what most people view as “miracles”? The sudden ability to walk for example, after a period of being unable to walk unassisted? (In my case due to severe …

My Body Hasn’t Always Felt Like Home

Denise ElysaAbout Denise Elysa, Chronic Illness & Healing, Creative Writing, Lived Experience Leave a Comment

I live in a body that for much of my life has not felt like home. These days I often don’t recognize it. I’d be lying if I said I never wince at its sight. It doesn’t look like the body that I worked so hard for, so many years ago. The clothing that used to feel most comfortable, no …

6 Years Ago I Celebrated Remission, Then I Crashed.

Denise ElysaAbout Denise Elysa, Lived Experience Leave a Comment

6 years ago yesterday – July 1, 2019, I gathered with friends and family to celebrate the end of my Lyme treatment (4-5 years of it at that point) and the beginning of what we thought was remission. 6 months later my life changed drastically in many ways and I experienced a series of overlapping events (about 3.5 years of …

I couldn’t have done this 6 months ago; Reflections on Lyme disease, Complex Chronic Diseases and how far I’ve come.

Denise ElysaAbout Denise Elysa, Lived Experience Leave a Comment

Barefoot on the earth, morning sun on my face, chicory and dandelion “cappuccino” in hand, bees in the flowers – all things I’m grateful for this morning.  This moment had me reflecting on the early days of my health journey when I was first diagnosed with Lyme disease and co-infections in my early 20’s. A lot of my dialogue around …