For over 5 years it has been a dream of mine to create a way to offer this work sustainably and affordably. My partner always teases me that if we were to win the lottery, he would finally be able to give up working a regular job and that I would continue to do this work for free. He’s probably …
Pneumonia, the doctor would have missed it except for this… (and why I view it as a sign of healing)
I have pneumonia at the moment and I’m acutely aware of how different this experience would have been 10 or so years ago when I first became chronically ill with Lyme and co-infections. The general medical lens of someone with my current complex chronic diseases (ME/CFS, MCAS, POTS etc.,) developing pneumonia, is obviously not great. Patients with these conditions are …
Welcoming 2026 softly…
Welcome to 2026! This first full week of January can bring up a lot for people – relief, pressure, chaos, ease, slowness, and more. If you’re a parent you may feel relieved that school/daycare is back in, routine is returning. If you’re a parent to a child with additional needs or challenges around school, this week might bring more stress, …
I Need to Name Something I’m Seeing in the ME/CFS, MCAS, POTS / Complex Chronic Disease Community
I need to name something that others, and I have been seeing a lot of online recently, that I feel does more harm than good to the ME/CFS, MCAS, POTS, Complex Chronic Disease Community that it claims to serve. Lately I’ve been seeing a lot of content creators sharing how they’ve miraculously recovered (sometimes “overnight”) from these illnesses. Many of …
My Word for 2026
Simplicity; my word for 2026. Every year I choose a single word to guide me, or really I should say, a word chooses me. An anchor point to return to throughout the year. In the last few weeks this word continued to show up for me in meaningful ways, letting me know that it was the one, for 2026. Simplicity. …
