Defeated and Grateful: Holding Duality and Living Wholly

Denise ElysaAbout Denise Elysa, Chronic Illness & Healing, Creative Writing, ME/CFS Leave a Comment

A natural result of committing to this inner work is it tends to expand one’s capacity for duality. To hold multiple things at once. To allow two seemingly opposing things to be true, simultaneously. I am sitting here this evening both devastatingly defeated and overwhelmingly grateful. I am watching as my partner modifies our home yet again to meet our …

Yesterday I left my wheelchair in the car – on purpose.

Denise ElysaAbout Denise Elysa, Lived Experience, Mind-body healing, POTS Leave a Comment

Yesterday we took our youngest to the Aquarium…and I left my wheelchair in the car. Most of healing does not happen overnight, nor in big, sudden, social-media worthy shifts. Have I experienced what most people view as “miracles”? The sudden ability to walk for example, after a period of being unable to walk unassisted? (In my case due to severe …

My Body Hasn’t Always Felt Like Home

Denise ElysaAbout Denise Elysa, Chronic Illness & Healing, Creative Writing, Lived Experience Leave a Comment

I live in a body that for much of my life has not felt like home. These days I often don’t recognize it. I’d be lying if I said I never wince at its sight. It doesn’t look like the body that I worked so hard for, so many years ago. The clothing that used to feel most comfortable, no …

I heard myself in another Mother today

Denise ElysaAbout Denise Elysa, Creative Writing Leave a Comment

I heard myself in another mother at the beach today. The gentle but firm, almost cautious tone.The endless listening as her child did not respond to her questions but continued to share the internal mental dialogue that was running in his mind.The timers, and gentle reminders.The carefully expressed, calculated front loading.The patience and softness in her heart as it was …

Do it Sick. (Creating an intentional life from exactly where you are)

Denise ElysaAbout Denise Elysa, Chronic Illness & Healing, Lived Experience Leave a Comment

This post is all about creating an intentional life for yourself – from exactly where you are right now. Do it sick. Do it lonely. Do it poor. Do it uncertain. Do it with kids. Do it while things are messy. Do it scared. This isn’t about pushing yourself beyond your means – whether that be financially, physically, or based …