I need to name something that others, and I have been seeing a lot of online recently, that I feel does more harm than good to the ME/CFS, MCAS, POTS, Complex Chronic Disease Community that it claims to serve. Lately I’ve been seeing a lot of content creators sharing how they’ve miraculously recovered (sometimes “overnight”) from these illnesses. Many of …
Defeated and Grateful: Holding Duality and Living Wholly
A natural result of committing to this inner work is it tends to expand one’s capacity for duality. To hold multiple things at once. To allow two seemingly opposing things to be true, simultaneously. I am sitting here this evening both devastatingly defeated and overwhelmingly grateful. I am watching as my partner modifies our home yet again to meet our …
A Love Letter to My Illnesses (and Body)
This is not a letter of martyrdom, but of radical responsibility. For the choices I did and did not make and the actions I did not take. Although I understand that we operate in systems, families, communities, and everyone plays a role that impacts the other, this is my responsibility to own – and doing so, empowers me. I’m sorry. …
Do it Sick. (Creating an intentional life from exactly where you are)
This post is all about creating an intentional life for yourself – from exactly where you are right now. Do it sick. Do it lonely. Do it poor. Do it uncertain. Do it with kids. Do it while things are messy. Do it scared. This isn’t about pushing yourself beyond your means – whether that be financially, physically, or based …
